Portuguese Researcher Launches Social Network For Users With Rare Diseases

The cure for a rare disease could not be in research but in the experience of other patients in a shared social network that a Portuguese researcher at MIT wants to launch by the end of the year. Professor at the Portuguese Catholic University, at the Massachusetts Institute of Technology (MIT) American and coordinator of the Doctoral Program in Tecnological Change and Entrepreneurship at the CMU Portugal Program, Pedro Oliveira says that the network is being developed and that "patients are being asked to integrate the platform and test it." The social network for patients with rare diseases is one of the outcomes of the project “The Role of ‘User Innovators’ in the Development of Telecom Products and Services”, developed as part of the Carnegie Mellon Portugal Program. 

Read the full article at Expresso Online (November 9, 2013), Correio da Manhã Online (November 9, 2013), Diário Digital (November 9, 2013), Sol Online (November 9, 2013), Público Online and PDF (November 10, 2013),  Diário de Notícias (November 10, 2013),  A Bola (November 10, 2013),  Diário de Coimbra (November 10, 2013) rcm pharma (November 11, 2013), Diário dos Açores (November 12, 2013) and Diário de Leiria (November 12, 2013), Atlântico Expresso (December 2, 2013).